From frog eyes to human hope: a leap in genetic research
We’re proud to introduce the first of four research projects funded by the GENeHOPE Fund : the ENHANCE-MCOR project. This research tackles microcoria (MCOR), a rare genetic disorder marked by abnormally small pupils, light sensitivity, and often progression to severe glaucoma. The cause? Disruptions in the “dark matter” of our DNA, the non-coding regions that […]
Aurélien, living with Marfan syndrome: “You can always take action!”
Right from the start of his testimony, Aurélien’s father, Romain Alderweireldt, sets the tone: “Tears are never far when I talk about this. So I often take refuge in science. Because it offers perspective. Because it gives hope.” Aurélien will soon turn 10. He has a rare and severe neonatal form of Marfan syndrome. “At […]
A First Grant Ceremony for GENeHOPE: A Powerful Moment of Hope and Commitment
On June 23rd, GENeHOPE had the great pleasure of organizing its grant award ceremony. Hosted at Belfius, this exceptional evening brought together major donors, partners, sponsors, but also affected families, as well as members of GENeHOPE’s management, scientific, and support committees. This ceremony marked a major milestone: the selection of four outstanding research projects following […]
Jo De Wolf, new member of the GENeHOPE Support Committee
The GENeHOPE Fund, dedicated to groundbreaking research into genetic diseases, is proud to welcome Jo De Wolf, CEO of the publicly listed logistics real estate company Montea, as a new member of its Support Committee. His decision to join GENeHOPE stems from a deeply personal motivation: the desire to contribute to a meaningful, human-centered, and […]
A Prestigious Recognition for a Leading Figure of GENeHOPE’s Scientific Committee
At the end of April, GENeHOPE Fund was delighted to celebrate the honor awarded to Professor Corinne Antignac, co-chair of the Scientific Committee of GENeHOPE, who received the title of Doctor Honoris Causa from UCLouvain during a ceremony on its Woluwe campus. This honorary title, traditionally granted in recognition of outstanding scientific merit, celebrates a […]
Marion, an Odyssey through Extremely Rare Genetic Diseases
“For years, we helplessly watched as the successive, sometimes dramatic attacks on the brain, lymphatic system, lungs, and a whole range of other symptoms gradually undermined our daughter’s health, school life, and childhood,” testify Frédéric and Valentine, Marion’s parents. “When doctors finally discovered that she carried a genetic mutation that severely disrupted her immune system, […]
Concert at Flagey
On February 2, 2025, GENeHOPE celebrated its first anniversary by organizing a charitable evening at the CAB Foundation, followed by an exceptional concert by Collegium Vocale Gent, conducted by Philippe Herreweghe, at Flagey. This evening provided a valuable opportunity to bring together nearly 200 engaged Belgian personalities, all united to support the cause of genetic […]
